Alzheimer's as a family disease: When children become "parents"

How Alzheimer's caregivers get pulled into their loved one's reality

Caregivers, most often children and spouses, do not just witness a family member's cognitive decline—they also often become drawn into it, navigating a world in which the typical rules of time, order, or logical continuity may not apply.

An Alzheimer's patient discusses her condition with children

Alzheimer's is a deadly disease that profoundly changes a person's abilities and personality, which makes it difficult to explain to kids. Responding to potentially uncomfortable questions with honesty (and relatable imagery) about the costs and nature of the disease goes a long way in fostering understanding.

How family members disappeared into dementia

This narrative feature describes one family's troubling experience with frontotemporal dementia, or FTD, which emerges in the prime of adult life — as young as 40, in some cases — and degrades the brain's ability to plan, organize, express language, understand social cues, and exercise judgment.

See the challenges of navigating Alzheimer's caregiving

This 2025 PBS documentary provides a window into the experiences of three families navigating the struggles and beauty of caregiving for a loved one with Alzheimer's.

How Alzheimer's disease affected one family as symptoms progressed

News program 60 Minutes interviewed a couple navigating aging and Alzheimer's over a 10-year period to illustrate the effects of the disease on their lives.

After a dementia diagnosis, it's important to plan ahead but also savor the moment

The next steps after a diagnosis include taking lifestyle steps to slow disease progression and completing legal paperwork about long-term medical preferences. It's also important to appreciate the moments and days ahead and find humor in them, when possible. (Some users may encounter a paywall.)

A first-person account of receiving an Alzheimer's diagnosis

Having Alzheimer's is a bit like having a part of your brain sliced away each day, according to author Greg O'Brien. This 34-minute podcast episode introduces O'Brien and his co-host, author David Shenk, as the two embark on a multi-season conversation on Alzheimer's disease and O'Brien's diagnosis.

Alzheimer's disease is the leading cause of dementia and risks rise after age 65

Read this primer about Alzheimer's disease and learn what factors increase the risk of this form of dementia, including genetics, being a woman, and health conditions, including high blood pressure.

America's financial burden from dementia in 2025 was $781 billion

That figure, calculated by researchers at the University of Southern California, includes medical and long-term care costs, unpaid family and friend caretaking, lost productivity for patients and their families, and the economic loss in quality of life for patients and their families. In 2025, they estimate there were 5.6 million people living with dementia.

Five to ten percent of Alzheimer's cases are early-onset

Early-onset Alzheimer’s typically emerges around 40 to 50 years of age, with devastating effects. This video follows Brian, diagnosed with the disease at age 54, as he travels the country as an advocate for research and discusses the progressive mental fog of Alzheimer’s.

Dementia caregiver training programs exist—but they aren't common

Comprehensive dementia care programs go beyond offering support to caregivers. They train people on how to modify their homes, communicate with their loved ones with dementia, and cope with the stress of caregiving, among other skills. Yet despite evidence showing their effectiveness and the economic benefit of avoiding unnecessary emergency room visits, these programs are often poorly funded and difficult to find.

Explore this 1440 Original video offering a primer on Alzheimer's disease and what's known about its incidence, causes, and more.

How Alzheimer's disease becomes fatal

Despite more than 100,000 people with Alzheimer's dying each year, the specific cause of death is not the disease itself. Often, secondary diseases arise from complications with the disease, including pneumonia, severe falls, malnutrition, or infection. Read more about the range of complications caused by Alzheimer's here.

Alzheimer's brain changes may begin years before symptoms appear.

Does our fear of Alzheimer's create stigma around its treatment?

Surveys suggest our fear of Alzheimer's as a disease outranks that of heart disease and cancer. This piece argues our fear of aging and the slipping away of our mental capacities make it more difficult to treat Alzheimer's compassionately.

Links between long-term caregiving and chronic stress

This Cleveland Clinic overview suggests that around 60% of people caring for family or loved ones with health conditions will experience burnout. Caregivers prepare meals, help with transportation, administer medications, and perform daily tasks for others, all while managing their own lives. This guide may help readers overcome the guilt or frustration of long-term caregiving to seek alternative options.

Watch this award-winning short film depicting what it feels like to live with dementia. (Film has English subtitles.)

Can your identity be preserved amid dementia?

Memory loss associated with progressive dementia raises questions about whether a person's identity can be maintained during the disease's progression. One outlook suggests we define ourselves by our social relationships—offering a potentially more humane approach to caring for those with dementia.

Memory disorders disrupt the brain's ability to make, store, or recall memories

These disorders stem from reversible issues like vitamin deficiencies or irreversible causes such as stroke or dementia. Only one type of dementia—familial Alzheimer’s disease—is directly inherited and accounts for about 20% of Alzheimer’s cases.

Millions of aging Americans are facing dementia or cognitive impairment—alone

An estimated 4.3 million people aged 55 or older who have cognitive impairment or dementia live alone in the US. The individuals facing these challenges are more likely to be women, people of color, and to generally be poorer and less educated than other older adults who are also living alone.

Financial caregiving 101

In this podcast episode, a financial expert outlines how to prepare to financially take care of an elderly parent before they get sick or an emergency happens. This includes ensuring their payments are automated, getting access codes for their cell phones and accounts, and more.

Dementia describes progressive memory issues that impact daily activities

Although Alzheimer's disease is sometimes thought of synonymously with dementia, there are multiple types of dementia, which manifest in memory loss and other symptoms that make it challenging to perform daily tasks. These types include Lewy Body dementia, vascular dementia, and frontotemporal dementia. Parkinson's disease is not a form of dementia, but this movement disorder can sometimes develop into issues with memory and a formal diagnosis of dementia.

The first identification of Alzheimer's was made in 1906.

Women more likely than men to report strain of being a caregiver

A Pew Research Center caregiver analysis from 2026 indicates that, though men and women both say caring for aging parents improved their relationships with their parents, women are more likely than men to report that it had a negative impact on their emotional well-being and physical health.

How do 'dementia villages' work?

The goal of good dementia care is to preserve a patient's quality of life as the incurable disease progresses, maximizing their ability to lead normal lives and maintain their health and dignity. Dementia villages are small neighborhoods built for people with severe dementia, with typical neighborhood haunts like salons or grocery stores staffed by people trained in dementia care, helping residents maintain a sense of autonomy and connection.

Medical experts warn that completing genetic testing for Alzheimer's can be fraught, in part because there's a shortage of genetic counselors to help navigate the findings and their potential implications.

Neurodegeneration is the process underlying dementia, but it may happen for myriad reasons, and its triggers are under investigation.

"Plaques" and "tangles" are top potential causes of Alzheimer's—but questions remain

The exact causes of Alzheimer's—and how to treat it—continue to be the subject of intense research. Two leading factors are amyloid beta plaques and tau protein tangles, which effectively pile up in the brain and interfere with neurons and cause cell death, which manifests as memory loss and other symptoms.

Read the original 1907 paper on the first known Alzheimer's patient, which was identified by Dr. Alois Alzheimer.

Alzheimer's can cause significant brain shrinkage in the affected brain regions, including the hippocampus.

Alzheimer's in the United States is most prevalent in the South and the East.

Visualize the difference between a healthy brain and one with Alzheimer's.

Taxi and ambulance drivers appear to have the lowest risk of dying from Alzheimer's disease out of 443 occupations, which suggests that constant real-time navigation work strengthens the hippocampus and may help protect against the disease.

How reading and writing can lower dementia risk by almost 40%

Research published in 2026 that tracked almost 2,000 older adults for an average of nearly eight years suggests that lifelong exposure to intellectual stimulation, such as learning a language, reading, and writing, can lower dementia risk by as much as 40%.

The deadly genetic disease that steals shut-eye

Few are haunted by fatal familial insomnia. This neurodegenerative disease is typically carried through bloodlines via genetic mutation of the prion protein gene, forcing the body to create abnormal and pathological protein variations that can corrupt normal versions. This article follows a musician as they attempt to come to terms with the FFI plaguing their family (and, possibly, their future).

Researchers are exploring neural links between Alzheimer's and autism

Recent DNA sequencing and molecular biology studies suggest that similarities in genes, neural circuitry and patterns of disease warrant further exploration to potentially better understand both conditions and how to treat them. (Some users may encounter a paywall.)

Listen to storytellers explain the legacy of memories shared between children and their mothers

In this podcast, people describe the strength of certain memories, what events stay with them, and when and why grief washes over them. One describes the challenging task of selling her mother's cemetery plots; another, keeping a promise to her son to learn to swim; and in the third, a son discusses the strength of familiar food smells.

Watch patient stories describing life with macular degeneration

This video series features patients discussing their experiences with the disorder, family members describing caregiving, and other insights about the disease.

True crime survivors often deal with the fallout from their association long after the case is closed

Collier Landry was a preteen when he notified police and later testified that he had overheard his father killing his mother. His role in the case cost him his dog and adoptive sister, and, as recently as 2023, led his extended family to reject him.

USA Today asked readers about their grief—and received more than 700 responses

The submissions included one moving story of two women whose sons died by drug overdose. The duo wrote that they found each other in a support group and decided to navigate their respective difficult situations by starting a podcast together called "Two Moms with Two Dead Kids," which focused on what life was like in the years following the deaths of their children.

Children of 9/11 Ground Zero responders are suffering from intergenerational trauma similar to what's seen among the children of Holocaust survivors, according to recent research.

Early-onset Alzheimer's can appear as early as age 30, but estimates of its prevalence remain uncertain.

The children of parents who died on 9/11 share their stories in remembrance

Many children of 9/11 victims were too young to remember their parents who died. They’ve grown up living with the tension between having a personal connection to the day but few, if any memories. Read some of their stories.

Genetic blood test offers an estimated clock on when Alzheimer's symptoms may appear

The 2026 research finding from researchers at Washington University School of Medicine in St. Louis—if validated in broader populations—suggests that an already available blood test could estimate when Alzheimer's symptoms may begin within a margin of several years. The test detects a protein called p-tau217 found in blood plasma and the researchers incorporated the findings from that blood test into a statistical model to come up with the symptom timeline predictions.

After being diagnosed with lupus, O'Connor moved to her family's Georgia farm

In 1950, O'Connor began feeling ill and returned to Georgia, where she was diagnosed with lupus, the same disease that killed her father when O'Connor was just 15. After the diagnosis, O'Connor and her mother moved to Andalusia, the family farm north of Milledgeville, Georgia.

How frontotemporal dementia changes your personality

Significant changes in personality later in life are often attributed to psychological factors. But Dr. Bruce Miller, long-time researcher of FTD, argues this shift is most often attributable to changes in the brain.

Watch this 1440 Originals video on specialized residential communities designed to mimic towns or neighborhoods for dementia patients.

A super-sniffer smelled her husband's Parkinson's disease years ahead of symptoms.

Some dementia cases may be linked to treatable microorganism infections in the brain.

Smell is a robust memory cue for individuals with Alzheimer's disease

Odor is more effective than both visual and verbal cues for triggering autobiographical recall in Alzheimer's disease, according to 2021 research.